Felicia Lee Dyer (![[info]](http://l-stat.livejournal.com/img/userinfo.gif){kind=small} felicialee1) wrote,@ 2007-09-18 12:28:00 |
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Short Update
It's been three months, and now I'm finally starting to be able to keep things down. Of course, the diet is totally the opposite of my former diet (high protein, high fat, low carbs). It is weird going back on all of the things I've been doing for a decade. It feels all wrong, but I'll do just about anything to keep myself from ever having another attack again.
I'm going to have a third surgery, an exploratory one, within the next couple of weeks. I have a tube sticking out of my stomach, and he is going to go up that tube with a camera and look through my entire system. Since he can't do the traditional ERCP, he put a feeding tube in my old stomach, and is going to use the tube to look. Very inventive. He was the only GI willing to go the extra mile. All of the others just sent me to another hospital, or sent me home to die. So I got really lucky there.
Hopefully he'll find that it was acute pancreatitis, not chronic after all, and I can come back home and live a somewhat normal life, with this never happening again. I have only had one attack since I came home on September 4th, and I went to the ER. They were unable to get an IV in, but gave me some IM painkillers and anti-nausea meds. As soon as the attack was stablized, they sent me home. I'm okay with that.
Yesterday I had another PICC line put in at the hospital. It will let docs put an IV through and give me meds that way. On Thursday I'm having a Celiac Plexus Block.
I have read that Pancreatitis is the second most painful disease in the world, bone cancer being number one. Coming from someone who seems to be ill all the time (damned inbred genes), I can say with candor that Pancreatitis is the worst thing I've ever felt in my life. The pain is so unbelievable, so horrible, that it's almost impossible to explain. During attacks, if given the choice of riding out the attack with no help, or dying and having it be over immediately, I would choose 100 out of 100 times to die at that moment. Luckily, I seem to be recovering, albeit so slowly. Thank God.
Hope you are all doing well!
Felicia :)
It's been three months, and now I'm finally starting to be able to keep things down. Of course, the diet is totally the opposite of my former diet (high protein, high fat, low carbs). It is weird going back on all of the things I've been doing for a decade. It feels all wrong, but I'll do just about anything to keep myself from ever having another attack again.
I'm going to have a third surgery, an exploratory one, within the next couple of weeks. I have a tube sticking out of my stomach, and he is going to go up that tube with a camera and look through my entire system. Since he can't do the traditional ERCP, he put a feeding tube in my old stomach, and is going to use the tube to look. Very inventive. He was the only GI willing to go the extra mile. All of the others just sent me to another hospital, or sent me home to die. So I got really lucky there.
Hopefully he'll find that it was acute pancreatitis, not chronic after all, and I can come back home and live a somewhat normal life, with this never happening again. I have only had one attack since I came home on September 4th, and I went to the ER. They were unable to get an IV in, but gave me some IM painkillers and anti-nausea meds. As soon as the attack was stablized, they sent me home. I'm okay with that.
Yesterday I had another PICC line put in at the hospital. It will let docs put an IV through and give me meds that way. On Thursday I'm having a Celiac Plexus Block.
I have read that Pancreatitis is the second most painful disease in the world, bone cancer being number one. Coming from someone who seems to be ill all the time (damned inbred genes), I can say with candor that Pancreatitis is the worst thing I've ever felt in my life. The pain is so unbelievable, so horrible, that it's almost impossible to explain. During attacks, if given the choice of riding out the attack with no help, or dying and having it be over immediately, I would choose 100 out of 100 times to die at that moment. Luckily, I seem to be recovering, albeit so slowly. Thank God.
Hope you are all doing well!
Felicia :)
