Felicia Lee Dyer ([info]felicialee1) wrote,
@ 2007-10-08 10:01:00
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Some Good News
The pain block went very well. I got three
bags of IV solution (they said I was extremely dehydrated). So that
was a plus.

When I woke up, that was the first time I'd ever woken up in a
recovery room not in horrible pain. Sure, I know, I wasn't expecting
pain for getting a block, but it just felt odd, because all of the
other times I've woken up I've been in pain.

I think the block worked, but I haven't had any pancreatitis attacks
to test it (and certainly don't want one!).

I did have another attack two days before the block (Tuesday, September 25th). I was
so disappointed. I was really hoping this was behind me. Eventually
I had to go to the ER, although we tried to head it off at the pass
here at home.

In the ER I got dilaudid, zofran and phenergan. Once my pain was
under control, my PCP called to say that if I didn't want to be
admitted, that was fine, since my labs weren't elevated (most times
they aren't, during an attack). So I got to go home and sleep
comfortably.

I saw another doctor in the PCP practice. My regular PCP
wasn't working. This doctor seemed a lot more familiar with
pancreatitis and said that if it is sphincter of oddi, then there is
nothing I could have done NOT to have the attack. So he said not to
beat myself up over my diet, even if I am trying to stay as low-fat
as possible. That made sense.

Hopefully when I have surgery on October 3rd (the exploratory one up
the feeding tube), he will find it is SOD and be able to do a
sphincterotomy at that time and I'll get some relief. Until then, I
have the block to protect against the worst of the pain (I pray!),
and I have a PICC line now to aid them in giving me IV fluids, pain
meds, nausea meds and to take labs. I also have the feeding tube if
I find myself NPO. The tube is in the jejunum, which is past the
pancreas, so it doesn't cause attacks. At least I have that!

Look for another update later today (post surgery).

Cheers,

Felicia :)



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[info]danloncaric
2007-10-08 08:10 pm UTC (link)
I had lots of dilaudid when i was in for my amputation. Good stuff. Speaking of waking up in recovery in pain, I've always had the opposite experience - I wake up in recovery usually in no pain at all, with an IV attached and some nice pain meds flowing in.

When I had my right leg amputated, however, I had the worst experience of my life. I woke up in the recovery room, out in the middle of a walkway, not even in a cubicle. I sat up on the gurney that they had me on, and had no legs - took me a while to get my head around it, had completely forgotten that I was being amputated. The weirdness then set in. I had no pain meds. They had ordered them, but couldn't find them. My pain level was off the scale, and all they would give me was ice chips. I truly didn't know where I was. I thought I was in a different country - didn't recognize the hospital. After 2 hours, they wheeled me back to my room - still in horrible pain. Try that on rough tile floors. As we passed the main entrance, I saw the name of the hospital on the window and felt just a bit reassured. Once I was in the room, my wife was there. You don't keep me in pain with my wife around. Within 10 minutes, I had a double shot of morphine in me, and they were hooking up the dilaudid. God bless her.

I know pain, and I hope your pain is managed.
Regards,
Dan Loncaric

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[info]felicialee1
2007-10-08 08:27 pm UTC (link)
What a nightmare! I can't even imagine being in that much pain. Thank God for your wife.

One day in between hospital stays here at home I woke up with amnesia. I knew who I was, but had no idea why I had a tube sticking out of my stomach or what was wrong with me. I had to go look it up on the internet (bookmarked links) in order to find out what was wrong.

Glenn was still asleep and I didn't want to scare him, so I just hit up the internet and eventually it all came back to me. I've had on and off amnesia since this began. I'm sure it is due to the medication.

Great hearing from you!

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[info]drizztdj
2007-10-09 12:36 pm UTC (link)
I've been scared to comment, but Felicia I hope things continue to get back to "normal" (if there is a normal) where you can get back to your garden and maybe even a few hands of poker.

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